Friday, 20 September 2019

Managing Pain and Other Changes

Yesterday I took a short nap at about 5pm. I woke up with my right arm numb and neural pain, the sorts of symptoms I was having so often on my left arm that it was perhaps not so obvious on the right, as the right has never been symptom severe as the left, although in fact it has just about the same level of subclavian artery occlusion and [100% when Rob did testing], it has a slightly wasted lateral aspect of my hand and the scalenes are even closer together than the left side. For me this just makes it all the more definite that I should have surgery on the right side when the time is right. I really hope my surgeon can fit me in before the end of the year, and far enough away from Christmas that I will be able to manage the pain and enjoy it. Mind you, I am already coping so well after one week on the left side, it is amazing.

I am having to see a GP this afternoon because the receptionists couldn't manage to ask one of the GPs verbally if I could briefly increase my Oramorph for a bit longer as to cut it from 120mg a day to 40 is a big cut. I am going to negotiate 60mg per day, so taking 10mg every 4 hours, or something like that. It is a shame I have to waste a GP appointment as this could so easily have been done over the phone. Still, my carer thought I should get this checked as it is Friday, and to make sure all is well before the weekend.

I am still trying to do my stretches and breathing exercises. Having my hair washed in the bath was easier today than on Tuesday, so things are changing all the time. I am also extremely tired so lot of sleep is necessary, but that is OK - I only had major surgery just over a week ago. I also have extreme pain over my sternum that feels like an elephant has stepped on it. That is not so great!

https://www.youtube.com/watch?v=93hK6pgu_v4

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